Posted by: thedianestory | February 13, 2011

Health Update Part 2

February 13, 2011

Hello friends. My apologies for not getting this update up sooner after I met with my GYN, but I have been having lots of rough days recently and haven’t felt up to much. So here is the quick update:

I saw my GYN on the 7th of February as my Pain Specialist wanted me to meet with him before doing a nerve block to talk about the possibility of my pain being from recurring endo. I am sure that I have active endometriosis growing, but convincing my gyn of this seemed rather impossible. He doesn’t think my pain is endo related, which such rather ignorant line of thinking considering my surgery in 2009 showed recurring endo, post hystrectomy. So my gyn doesn’t want to do surgery to look for endo, rather he wants my pain dr to go ahead with a nerve block.

My gyn was going to have a phone conference with my pain dr. so they could confer on what line of treatment they though was best to proceed with. I have not yet got to meet again with my pain specialist to find out if they did indeed talk. So I am hoping to see my pain doctor this week so find out what he thinks after discussing things with my gyn.

I am also currently seeking out another endometriosis specialist after a friend put me in touch with a friend of hers who just had surgery with a world-renowned specialist for endo. She too has recurring endo. post hysterectomy but has had pain relief after surgery with this doctor. She and I have been emailing back and forth this weekend. It has been nice talking to someone who can seriously relate. Our stories are oddly similar. Anyway, I have requested a records review with this doctor and his office should be calling me no later than Tuesday.

Please continue to pray for pain relief and pray that the Lord would give me confirmation that I am taking the right steps, or to guide me down another path if this is not the right direction. I’ve been pretty miserable for the last five four days. Please pray that I can actually rest some tonight and then actually get out in the sunshine today. It is supposed to rain the rest of the week, so it would be nice to soak up some Vitamin D before the storm.

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Responses

  1. I don’t think it is just coincidence that Sarah’s mother in law knew this person. I think God knew for one that yiou need someone you could talk to that truely understands what you are going through & that you needed to find hope with another doctor. One that won’t make you feel crazy for thinking that you could have endo again & that might be able to give you some lasting pain relief! God is good and I still have hope that he will cure you fully! I hope he is the one to do it! At least the pain from endo! But maybe he hs good referrals for your baldder disease & stomach issues because both have been shown to be related to endo in patients. I think this is a really good thing!

    • Thank you Sara and Carrie for your love and concern and prayers. You are great friends. And I did make it out in the sunshine today!

  2. I’m glad that you’ve found another specialist, since your doctor isn’t listening to you or looking at your records as he should be. I hope you go outside today. I know it’s hard, but try to make yourself even if it’s just a walk around the block. It will make you feel a little better. 🙂 I love ya and take care!

  3. I am glad u were able to get outside. Little bit and enjoy some sunshine. Love you and hope with your research u can find the right doctor to help. I am here to support u. I love u lots and wish I could make u better.

    • Thank you mom. I love you. I am working on getting all my medical records in order. It is a task, but will be worth it in the end. I love you so much. Thanks for your support.


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