Posted by: thedianestory | February 3, 2011

First Health Update for 2011

Random pic from Christmas

February 2, 2011

Hi friends. I realized that I haven’t written a single health update so far this new year and decided that several of you, friends and family, are curious what the updates are where my health is concerned. Some of you have tried and tried to call me (Aunt Judy) to get an update and I have been horrible about getting back to you – my apologies!

I had an appointment with my pain specialist today. I typically see him once a month as he manages all my pain medicine rather than three different doctors trying to prescribe me meds. So he has known for a couple months now that my pelvic pain has began flaring up again. Yes – you heard it right. Not only is my tummy still not healed but my pelvic pain has begun to set in again.  It started flaring up again around November of 2010, and I was just praying the pain/disease would not progress. But slowly, over time the pain has begun to be unbearable again. I feel like I did when endometriosis was present. Horrible, sickening pain. I know my body and know endo is growing again.

Many of you know that I had a complete hysterectomy in 2006 and that “normally” endometriosis stays away after that surgery. Problem being, that because of my age I have to be on hormone replacement therapy (hrt) to put a small dose of estrogen back into my body to prevent other problems such as osteoporosis and heart disease. Endometriomas (implants) thrive on estrogen. I’ve typically had implants so deep in the pelvic cavity that they were not completely excisable . This means that because of the low doses of estrogen put back into my body, these implants can continue to grow.

In 2009 when I was hospitalized off and on for two months when this stomach condition started I underwent a laporoscopy to look around the stomach and see if anything was visible that raised a red flag, and to check the pelvis for anything to explain my pelvic pain. My doctor, not expecting to find endometriosis, was obviously shocked when he discovered four, visible implants concluded to be positive for endometriosis. Upon further studying of these implants it is know known that these specific types of implants are known to produce the most pain of those positive for endo. (yeah for me)

Anyway, while that surgery did nothing for my ongoing stomach condition, it most definitely helped alleviate the pelvic pain that I had during that time. So that surgery at least helped my overall scale of pain. This is why back in November when I started having twinges (not sure that is a word, but it is MY word for my pain) of pelvic pain that I feared this horrible disease was growing back. As months have gone by I am now almost positive that I have recurring endo inside me.

So getting back to my appointment today, my doctor thinks that we should do another nerve block (I’ve had two previously) but after discussing my pain and reviewing my past problems he wants me to get in with my gyn first to discuss with him what is going on and see if he is on board to do a laporoscopy to look for endo. This being because my pain specialist won’t move forward with a nerve block if there is active pathology that could be causing the pain. Obviously this is because the nerve block is not going to help if there is actual disease there causing the problem.

Now, I already had an appointment scheduled with my gyn for the end of March but obviously that is very far away and when I told my doctor that today he said “absoulutely not. I was to go over there immedietely and tell them I needed to be seen soon.” Oddly enough I was already planning on stopping by there after my appointment with my pain doctor because I needed to make a payment. Anyway, you could see that God orchestrated my going in there because when I got in there to make my payment, as I was talking to the front desk lady, my doctor’s nurse came walking up and could tell I didn’t look good. She asked if I had an appointment that day and I said no but I needed to talk to her about that. So I told her what was up and she said she’d let my doctor know and will get me in within the next two weeks. She should be calling me tomorrow with a time, and I will follow up with her if I don’t hear back. Because I could see the workings of God in the situation and actually getting to speak with his nurse, I have faith the appointment time will work out and I will get in soon to see him.

So, the main details to take away from this long-winded post is that either way I am going in for surgery sometime in the next 6-8 weeks, either for a nerve block or a laporoscopy. I am not sure how I’m supposed to feel about this it, but I am oddly calm. So either I am numb from pain and emotions or God is giving me a huge showering of his love and grace. I’m sure it is the latter. Thank you Jesus for your love.

I think that just about does it for my update. I will blog more as I have more details and will try to be better about keeping you, my friends and readers up to date on my health. My hope is to be better about blogging again period. This is only my fourth blog in five weeks!

For now friends, I hope and pray you each are off to the start of a great year. I love and appreciate each and every one of you.

 

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Responses

  1. Oh my goodness, girlfriend! Thanks for the update! I am sorry to hear you will have to undergo ANOTHER surgery! On the other hand, it’s nice to finally have some answers and hopefully have SOME relief in sight. I think about you all the time (ok usually when it’s a bad time to call!) and you are always in my prayers!

  2. Have they discussed the option of removing estrogen & treating the risks with not having it? Might be worth it if you are going to have to have lap surgery every 6 months to a year for the rest of your life. So frustrating that it keeps coming back! I pray daily that someday soon you will be fully healed & able to live life without pain! Wish God would take it all away!


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