Posted by: thedianestory | November 3, 2009

The Long-awaited Update

November 2, 2009

Good evening friends. I have been out of the hospital since October 29, 2009. For those who don’t know, I was hospitalized on October 14, 2009. I spent one week in Feather River Hospital and then was ambulanced down to California Pacific Medical Center is S.F. for another nine days. A total of 16 days in the hospital, and still very few answers. The only thing the doctors came up with is that my stomach is “Hyper-sensitive” and the nerves do not want to allow anything on my stomach. I am still unable to eat as my stomach hurts insanely bad to put anything on it, or I puke everything I try to eat. I am drinking Ensure to try to keep up nutrition on some level.

While at Cal Pacific in S.F., the had inserted a PIC line and had me on I.V. nutrition. Then when they decided they didn’t know how to help me, the chose to send me home and take the PIC line out. I’m not sure why they think it is not a big deal for me to not be able to eat at home, but yet they had me on nutrition in the hospital. It is crazy that I still can not eat and am basically wasting away in pain at home. The hospital in S.F. put me on two nerve meds to try to get the nerves in my stomach to calm down and allow me to eat again, but they could take 4-6 weeks to work, if they even work. So I am struggling to get by each day and make it through.

I saw my family practitioner today and he is running more lab work and getting in contact with the GI doctor who saw me locally. They are considering putting a “J tube” in directly to my small intestine for nutrition. I am fine with that as long as the continue to try to figure out the problem as well. Putting a feeding tube in me is not “the answer.”

The docs at S.F. also said this could be related to my endometriosis and interstitial cystitis and the chronic pain I live in. I see my GYN tomorrow and will probably be having a laporoscopy in the next two weeks to see if there is anything gynecologically going on. It will at least be one more thing to rule out. Then Wednesday I see my pain specialist to talk about “managing” the pain.

I am on some heavy pain killers. One long-acting and one for breatkthrough pain. I will not even discuss what these drugs are – so I do not alarm anyone.

Please continue to pray friends for my health and that God would heal my body. Please pray for wisdom for the doctors if God is going to use the doctors to heal my body. I am incredibly weak and growing weary as I try to deal with this. I can’t even begin to describe the physical pain I am in and what that pain does to me emotionally as well.

Thank you to so many of you for praying for me, supporting me at home in the hospital. Many of you drove miles and miles to visit me in the hospitals and I can’t say thank you enough or even begin to express my gratitude. One day when I am better I hope to thank each one of you in person. You are all my lifelines right now and I am forever grateful for you all being in my life.

For now,

Diane

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Responses

  1. Love you Di! Maybe you should go to Redding with Misha!

    • Yes, we keep planning it and then I get too sick and can’t go! We need to make it happen. Love you.


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